Rare Disease Day

Right: Ella Amitai Sadovsky - cystic fibrosis. On the left, Reut Dafna - Marfan syndrome

A database on the rare genetic diseases in Israel and an artistic project called "Rare" that illustrates each of these diseases

A new site that serves as the first knowledge base of its kind in Hebrew in the field of rare genetic diseases in Israel - was launched on the occasion of the International Day for Rare Diseases, which is noted on a date that returns only once every four years - February 29.